• Huntingtons Disease
  • Stages

    Stage one: Denial. Apparently the first is one that’s supposed to stay a while, But I guess my situation is different. I wrapped up every sense of inclination that claimed I was sick and sent it away from deliverance I shoved it off a cliff along with the myth alleged “hope” and every bad thing that went with it. This […]

  • Huntington's Disease Youth Organization
  • Matty Ellison: From Zero to Hero

    Everyone knows Matty as the founder of the Huntington’s Disease Youth Organization, an advocate for youth around the world, and an inspiration to all. If anyone were to meet Matty for the first time, they would see a humorous, kind leader with a positive outlook on life…but very few would guess that behind his present, there lies […]

  • Huntingtons Disease
  • After the Darkest Night

    My mother cried today. It seems as though I am looking straight into the mirror every time her tear-stained eyes peer into mine while she sobs into my lap. I have begun to grow more and more familiar with the depths of sadness that she suffers from. It’s always a type of sadness that she cannot form […]

  • Huntingtons Disease
  • My Deceleration of Dependence

    I’ve always lived by the phrase, “Modest it hottest,” yet a this is a picture of me: naked, vulnerable, and dependent. Anyone who is close to me knows that I am terribly prideful. I don’t want anyone’s help. I can do everything on my own. I might be sick, but I’ll be damned if anyone I love has […]

  • Family
  • My Mother’s Keeper

    For me, the term “home” has never been a time or place. It’s never been hidden beneath the wooden stilts that faithfully support the foundation of my childhood home. It’s not confined within my fondest memories or preserved inside of the fascinating adventures that surround the depths of my deepest dreams. Home is a place that – […]

  • Huntingtons Disease
  • In Loving Memory: Lisa Mannone

    In the spirit of Christmas, CTC is dedicating ten days to honor and remember those who cannot be with us this season. In Loving Memory of Lisa Mannone  By Jenna and Gia Mannone Read in piece to our beautiful, amazing mother. You fought so hard and in reality, Huntington’s Disease DID NOT WIN. You won. […]

  • Huntingtons Disease
  • A 24-year-old’s Guide to a Midlife Crisis

    I wasn’t always scared of growing older. I wasn’t always afraid of the term “Death.” When I was a girl, the progression of time never fazed me. I had never lost a loved one or experienced the process of grieving. I just always assumed that my family and friends would be with me forever. And then suddenly, […]

  • Music
  • Winter Woe, part 2

    Follow along: “I’ve seen you before Won’t you shine A little light” “Spent some time just thinking ’bout days of joy” “Jump from the book, You’re not obliged to swallow anything you despise” “Raise your right hand Tell me you want me in your life Or raise your red flag Just when I want you […]