• Huntingtons Disease
  • Stages

    Stage one: Denial. Apparently the first is one that’s supposed to stay a while, But I guess my situation is different. I wrapped up every sense of inclination that claimed I was sick and sent it away from deliverance I shoved it off a cliff along with the myth alleged “hope” and every bad thing that went with it. This […]

  • Huntington's Disease Youth Organization
  • Matty Ellison: From Zero to Hero

    Everyone knows Matty as the founder of the Huntington’s Disease Youth Organization, an advocate for youth around the world, and an inspiration to all. If anyone were to meet Matty for the first time, they would see a humorous, kind leader with a positive outlook on life…but very few would guess that behind his present, there lies […]

  • Huntingtons Disease
  • After the Darkest Night

    My mother cried today. It seems as though I am looking straight into the mirror every time her tear-stained eyes peer into mine while she sobs into my lap. I have begun to grow more and more familiar with the depths of sadness that she suffers from. It’s always a type of sadness that she cannot form […]

  • Huntingtons Disease
  • No Name: Chapter One

    I’ve been trying to find a name for myself, and it seems that the further I dig into “who I really am,” the more unfamiliar I become, failing to even recognize my own image in the quick passing of a reflection. Ironically, most of this extra downtime has been spent on an almost (if not wholly) narcissistic […]

  • Huntingtons Disease
  • My Deceleration of Dependence

    I’ve always lived by the phrase, “Modest it hottest,” yet a this is a picture of me: naked, vulnerable, and dependent. Anyone who is close to me knows that I am terribly prideful. I don’t want anyone’s help. I can do everything on my own. I might be sick, but I’ll be damned if anyone I love has […]

  • Huntingtons Disease
  • My Huntington’s Disease Story

     Seth Rotberg For years, Seth has made a huge impact on the lives of young people who are affected by Huntington’s Disease. It all began during his sophomore year of college when only he started a 3-on-3 basketball charity event that brought in $10 thousand for HD in a matter of three years, all while he was still […]

  • Lessons
  • The Sparrow and the Bees

    By Kailey LeBlanc She was just a young bird with bees in her brain. I know it’s an unlovable image, but hear me out. For a time, many years ago, she soared brilliantly through sun-soaked skies, blissfully in tune with the songs of her Creator. In these days, the warmth of tomorrow’s promises lifted her […]