• Huntingtons Disease
  • Stages

    Stage one: Denial. Apparently the first is one that’s supposed to stay a while, But I guess my situation is different. I wrapped up every sense of inclination that claimed I was sick and sent it away from deliverance I shoved it off a cliff along with the myth alleged “hope” and every bad thing that went with it. This […]

  • Huntingtons Disease
  • After the Darkest Night

    My mother cried today. It seems as though I am looking straight into the mirror every time her tear-stained eyes peer into mine while she sobs into my lap. I have begun to grow more and more familiar with the depths of sadness that she suffers from. It’s always a type of sadness that she cannot form […]

  • Huntingtons Disease
  • No Name: Chapter One

    I’ve been trying to find a name for myself, and it seems that the further I dig into “who I really am,” the more unfamiliar I become, failing to even recognize my own image in the quick passing of a reflection. Ironically, most of this extra downtime has been spent on an almost (if not wholly) narcissistic […]

  • Huntingtons Disease
  • My Deceleration of Dependence

    I’ve always lived by the phrase, “Modest it hottest,” yet a this is a picture of me: naked, vulnerable, and dependent. Anyone who is close to me knows that I am terribly prideful. I don’t want anyone’s help. I can do everything on my own. I might be sick, but I’ll be damned if anyone I love has […]

  • Huntingtons Disease
  • In Loving Memory: Janet Howard

    In the spirit of Christmas, CTC is dedicating ten days to honor and remember those who cannot be with us this season. In Loving Memory of Janet Howard By John Howard I REMEMBER Realize I may have been given a gift My words to express emotions I feel beyond this tight lip Better left unsaid, […]

  • Huntingtons Disease
  • A 24-year-old’s Guide to a Midlife Crisis

    I wasn’t always scared of growing older. I wasn’t always afraid of the term “Death.” When I was a girl, the progression of time never fazed me. I had never lost a loved one or experienced the process of grieving. I just always assumed that my family and friends would be with me forever. And then suddenly, […]

  • Huntingtons Disease
  • Twenty-Three Going on Seventy

    I’m 23-years-old. Twenty. Three. Well, 24 in two weeks. I’m a full-grown adult sitting inside of the sink in front of my bathroom mirror, begging it to stop watching me. I keep the reflection foggy so that they can’t see me, and I keep my mouth sealed tight so they can’t hear my thoughts. I’m […]

  • Huntingtons Disease
  • My Huntington’s Disease Story

     Seth Rotberg For years, Seth has made a huge impact on the lives of young people who are affected by Huntington’s Disease. It all began during his sophomore year of college when only he started a 3-on-3 basketball charity event that brought in $10 thousand for HD in a matter of three years, all while he was still […]