• Huntingtons Disease
  • Stages

    Stage one: Denial. Apparently the first is one that’s supposed to stay a while, But I guess my situation is different. I wrapped up every sense of inclination that claimed I was sick and sent it away from deliverance I shoved it off a cliff along with the myth alleged “hope” and every bad thing that went with it. This […]

  • Huntington's Disease Youth Organization
  • Matty Ellison: From Zero to Hero

    Everyone knows Matty as the founder of the Huntington’s Disease Youth Organization, an advocate for youth around the world, and an inspiration to all. If anyone were to meet Matty for the first time, they would see a humorous, kind leader with a positive outlook on life…but very few would guess that behind his present, there lies […]

  • Huntingtons Disease
  • After the Darkest Night

    My mother cried today. It seems as though I am looking straight into the mirror every time her tear-stained eyes peer into mine while she sobs into my lap. I have begun to grow more and more familiar with the depths of sadness that she suffers from. It’s always a type of sadness that she cannot form […]

  • Huntingtons Disease
  • No Name: Chapter One

    I’ve been trying to find a name for myself, and it seems that the further I dig into “who I really am,” the more unfamiliar I become, failing to even recognize my own image in the quick passing of a reflection. Ironically, most of this extra downtime has been spent on an almost (if not wholly) narcissistic […]

  • Huntingtons Disease
  • My Deceleration of Dependence

    I’ve always lived by the phrase, “Modest it hottest,” yet a this is a picture of me: naked, vulnerable, and dependent. Anyone who is close to me knows that I am terribly prideful. I don’t want anyone’s help. I can do everything on my own. I might be sick, but I’ll be damned if anyone I love has […]

  • Family
  • My Mother’s Keeper

    For me, the term “home” has never been a time or place. It’s never been hidden beneath the wooden stilts that faithfully support the foundation of my childhood home. It’s not confined within my fondest memories or preserved inside of the fascinating adventures that surround the depths of my deepest dreams. Home is a place that – […]