• Family
  • My Mother’s Keeper

    For me, the term “home” has never been a time or place. It’s never been hidden beneath the wooden stilts that faithfully support the foundation of my childhood home. It’s not confined within my fondest memories or preserved inside of the fascinating adventures that surround the depths of my deepest dreams. Home is a place that – […]

  • Huntingtons Disease
  • In Loving Memory: Rosaria Emerick

    In the spirit of Christmas, CTC is dedicating ten days to honor and remember those who cannot be with us this season. In Loving Memory of Rosaria Emerick By MaryAnn Emerick The worst day of my life was when I lost my mom to her battle with Huntington’s disease: the rare disease that’s not so […]

  • Huntingtons Disease
  • A 24-year-old’s Guide to a Midlife Crisis

    I wasn’t always scared of growing older. I wasn’t always afraid of the term “Death.” When I was a girl, the progression of time never fazed me. I had never lost a loved one or experienced the process of grieving. I just always assumed that my family and friends would be with me forever. And then suddenly, […]

  • Huntingtons Disease
  • A Tribute to the 12 Days of NYA

    The Huntington’s Disease Society of America is raising awareness and scholarships for the youth who are affected by this terminal illness. I am fighting for my sister. I am fighting for my mother. I am fighting for my HD family who has loved me through all of my pain. Anything you can offer is greatly […]

  • Huntingtons Disease
  • Testing

    It’s raining today. Normally I would love the rain, but today it’s only in my head. The skies are clear and the sun is peeking out through patterned, white clouds over a perfect 75 degree morning. I can’t see it today though. Instead, I’m racing through the puddles in my mind while the rain keeps pouring, beating down hard […]