• Huntingtons Disease
  • Stages

    Stage one: Denial. Apparently the first is one that’s supposed to stay a while, But I guess my situation is different. I wrapped up every sense of inclination that claimed I was sick and sent it away from deliverance I shoved it off a cliff along with the myth alleged “hope” and every bad thing that went with it. This […]

  • Huntingtons Disease
  • After the Darkest Night

    My mother cried today. It seems as though I am looking straight into the mirror every time her tear-stained eyes peer into mine while she sobs into my lap. I have begun to grow more and more familiar with the depths of sadness that she suffers from. It’s always a type of sadness that she cannot form […]

  • Huntingtons Disease
  • No Name: Chapter One

    I’ve been trying to find a name for myself, and it seems that the further I dig into “who I really am,” the more unfamiliar I become, failing to even recognize my own image in the quick passing of a reflection. Ironically, most of this extra downtime has been spent on an almost (if not wholly) narcissistic […]

  • Huntingtons Disease
  • My Deceleration of Dependence

    I’ve always lived by the phrase, “Modest it hottest,” yet a this is a picture of me: naked, vulnerable, and dependent. Anyone who is close to me knows that I am terribly prideful. I don’t want anyone’s help. I can do everything on my own. I might be sick, but I’ll be damned if anyone I love has […]

  • Family
  • My Mother’s Keeper

    For me, the term “home” has never been a time or place. It’s never been hidden beneath the wooden stilts that faithfully support the foundation of my childhood home. It’s not confined within my fondest memories or preserved inside of the fascinating adventures that surround the depths of my deepest dreams. Home is a place that – […]

  • Huntingtons Disease
  • In Loving Memory: Rosaria Emerick

    In the spirit of Christmas, CTC is dedicating ten days to honor and remember those who cannot be with us this season. In Loving Memory of Rosaria Emerick By MaryAnn Emerick The worst day of my life was when I lost my mom to her battle with Huntington’s disease: the rare disease that’s not so […]

  • Huntingtons Disease
  • In Loving Memory: Lisa Mannone

    In the spirit of Christmas, CTC is dedicating ten days to honor and remember those who cannot be with us this season. In Loving Memory of Lisa Mannone  By Jenna and Gia Mannone Read in piece to our beautiful, amazing mother. You fought so hard and in reality, Huntington’s Disease DID NOT WIN. You won. […]

  • Huntingtons Disease
  • Inside Insanity: Exposing the Truth

      In today’s society, people with HD, (as well as people with mental illnesses) are often thrown into psych wards because their caretakers feel like they have no other choice. And I get that. I feel a strong sense of desperation everyday, but there are other options. Don’t get me wrong-I know that there are […]