In the spirit of Christmas, CTC is dedicating ten days to honor and remember those who cannot be with us this season.
In Loving Memory of Rosaria Emerick
By MaryAnn Emerick
The worst day of my life was when I lost my mom to her battle with Huntington’s disease: the rare disease that’s not so rare to me. My family has watched generation after generation suffer from this horrible disease, but our bond is like no other because of it. I watched my mom suffer and fight with so much strength and love, and no matter what her smile always shined through. She laughed even louder than me.
The only time I ever felt truly loved and protected was in her arms. Mom, I miss you today like every other day. Thank you for giving me the most important person in my life, and raising us into the women we are today. No one will ever understand the bond the three of us share. I know you are with us, through everything, every step we take. You would be so proud of us.
My mom’s journey made me who I am, and brought me to where I am today. Now, I know and love so many people who have watched their family members suffer, and people who suffer from HD themselves. On Rare Disease Day, we spoke out about all of those diseases that no one has ever heard of because they are so “rare…” but all too familiar to us. That day should be like everyday, and to so many, it is. Even though this disease can be ruthless, we still have the power to educate and spread awareness for our loved ones. Never stop fighting.
Mom, you taught me to laugh, to cry, to smile, to love, to be grateful, and to be the best person I can be. I can only hope I am half as amazing as you were. Big hugs and kisses forever.
I miss you so much.
I love you mommy.